The weight of caring for an autistic child
If you’re a parent or carer of an autistic child, you’re likely juggling more emotional, physical, and logistical demands than most people could imagine. The daily pressure often builds up without the support systems you desperately need. The result? Exhaustion, frustration, and a constant wonder if relief is ever coming.
Unpredictability and emotional toll of autism
No two days are the same. Every autistic child is different, and so are the experiences their families navigate. One moment might be filled with joy, while the next can unravel into confusion or emotional turmoil. Just when you think you’ve found a rhythm, everything can shift again—leaving you back at square one.
Personal and professional perspective on parental stress
As a clinical psychologist and the parent of an autistic child, I see both the science and the lived reality. I hear what other parents say, and I feel it myself. The truth is parents of autistic children experience higher levels of stress than those raising children with other disabilities.
Understanding autism spectrum disorder
Autism spectrum disorder (ASD) is a developmental condition that affects communication, social interaction, and how someone interprets their world. It includes a wide variety of traits, but common challenges involve understanding social cues, engaging in conversations, or navigating repetitive behaviours and routines.
Everyday impact on family dynamics
Most diagnoses occur in early childhood, but the impact of autism reaches into all corners of daily life. From routines and learning to emotional regulation, it can affect the entire family dynamic.
The burdens beyond autism itself
For many parents, the hardest part isn’t autism itself—it’s everything that comes with it. Delayed diagnoses, long waitlists, expensive therapies, and overwhelming paperwork all stack the pressure higher. You can spend hours on hold, only to be told there’s another form to complete or another appointment to book.
NDIS cuts adding to parental stress
Recent cuts to essential services like the National Disability Insurance Scheme (NDIS) have only made matters worse. What was once a lifeline has become another source of stress, leaving families without the support they need to function.
The invisible workload of autism parents
Behind the scenes, parents serve as therapists, educators, advocates, and caregivers. They often coordinate complex schedules, push for inclusive education, and provide constant emotional support. This invisible workload adds up—fast.
Burnout and systemic failure
Chronic stress and caregiver burnout are serious and growing problems. When systems fail to deliver, parents are left to fill the gaps—often at the cost of their own wellbeing.
Simple steps to find relief
So, what can parents and carers do? First, be gentle with yourself. On the hardest days, even a few deep breaths or a short pause can create space to reset. These small moments can offer just enough relief to keep going.
Asking for help and building community
Ask for help—it’s a sign of strength, not weakness. Whether it’s from a GP, psychologist, or another parent who understands the journey, support can be a lifeline. Online groups and parenting forums can offer empathy, advice, and connection.
Programs that reduce stress and build skills
Evidence-based parenting programs have been shown to lower stress levels and improve confidence. They also help in managing tough moments while strengthening the parent-child bond. The Australian government offers a free online program, co-written by experts, to help parents of children with disabilities cope more effectively.
Reset moments are powerful
When things feel overwhelming, taking even a moment to reset is powerful. You don’t need to have all the answers—you just need a breath, a pause, and support.
The role of community and schools
Friends, family members, and educators can also play a crucial role. Many parents act as case managers within schools, trying to ensure their child is safe, included, and understood. They’re not being demanding—they’re being protective.
Acts of kindness make a difference
If you’re in a child’s circle—whether as a teacher, neighbor, or extended family—recognize the weight these parents carry. A bit of compassion and a willingness to listen can change someone’s entire day.
Small gestures, big impact
You don’t need to fix everything. Sometimes, dropping off a meal, offering to do a school pick-up, or sending a kind message is enough. These acts of care might seem small, but their impact is immense.
Support is available
Support and information are out there. If you’re feeling overwhelmed or know someone who is, call Lifeline on 13 11 14.
